When I read this article this morning I cried. Not because I was sad or upset but with relief because I may have found a way to describe how I feel to someone who looks at me and thinks I look OK. Someone who thinks that all my moans and groans about being tired, exhausted, and wiped out to the point of collapse and tears of frustration and pain are fiction. That’s the problem with an invisible illness. You look fine but underneath you are fighting to stay as normal as possible with every ounce of energy you have. If I could only find a way to explain that feeling, I would feel better. People would maybe understand and not judge. A little empathy and genuine concern costs nothing but you would think it costs the earth for its paucity.
I face any number of battles every morning before I go out of the house. I often use all my spoons before I get to work, and then I’m in deficit; running on empty whilst all the time destroying my engine. You can run on empty for a while. We all know that there is always something in reserve from what the car manufacturers tell you. Unfortunately when your body says enough is enough it’s usually time to wave the white flag and retire to bed for a while. Rest and recovery is vital in managing chronic fatigue syndrome and I spend most of my weekends in bed, either resting or asleep, just catching up from the week’s exertion. What a waste of time.
I hope that you will read about the Spoon Theory and imagine how it would impact you and your daily routine. It is the closest explanation I have seen for normally healthy people to start to understand what it is like to have depleted energy resources and reserves. I used to take my high energy for granted; Sport, competition, manic activity and multi-tasking were key skills of mine and I thrived on it. Now, I have to manage my energy supply. I only have so many spoons.